Tuesday, December 29, 2009
First funny experience with my wig
I have to tell everyone what happened to me yesterday. I was wearing a wig that the hair was very long, it made me feel like I was 20 again. Anyway, I was at the car wash vacuuming my car and the vacuum caught my wig and just sucked it right off my head. Kylie and I just started laughing especially when we looked over to see who was watching and the looks on their faces. I hurried and put it back on but it took a couple of tries to get it right. We had a good laugh all the way home. I guess next time I will where my shorter wig or scarf.
Friday, December 25, 2009
Bald is Beautiful?
Have you heard of the saying "Bald is Beautiful" Where did that saying come from? Tonight my husband shaved my head. No more hair! "Bald is not Beautiful" on me, but I have to say it feels alot better. I have been losing chunks of my hair this last week. I was not prepared to have it all gone so I would just watch it get thinner each day. My scalp has hurt,I don't even know how to explain how it feels. My scalp has been very tender if anyone would touch my hair it would hurt. If the wind blew just a little my head hurt. Even with the pain I was not ready to have it gone. The clincher for me was this morning when putting gel in my hair I looked at my hands and all I saw was hair stuck to my hands and I am talking alot of hair. Then I proceeded to get ready and it was falling in my eyes and mouth, I know gross but true. My the evening I was so tired of seeing my hair everywhere I knew it was time. I had and still have mixed emotions while my husband shaved my head. I had my 9yr old daughter taking pictures telling me it didn't look to bad(she is always kind). I then had my 6yr old daughter look at me with a look of pure horror and saying" I can't look at you mom you do not look good" then she would leave for a minute and come back with the same look and say "you need to always wear a hat or wig mom". Now if you know my daughter she tells you how it is so while she was talking we were all laughing but then I couldn't help but shed a few tears just because I thought the same thing and I could see through their faces that this is difficult for them to watch also and as much as I try to explain things to them they just don't understand. I am now wearing a pink beanie and my head no longer hurts. It is amazing to me that my head could hurt for the last week or two and in minutes of shaving my head there is no more pain?
So LOOK OUT the next time you see me I may be wearing a wig, scarf, hat or I just may be bald. j/k I wouldn't do that to you or me.
Anyway All is Well and I will have another update for you after my next treatment.
Thanks for your support.
No Regrets,
Sunday, December 20, 2009
CHEMOTHERAPHY=NO FUN
Sunday, December 13, 2009
Stay Positive!
Tuesday, December 8, 2009
The Definition of Shaquel
Sunday, December 6, 2009
Get Ready, Get Set, Go !
1st step-Getting Ready
I have been getting ready by having all my surgeries, blood tests, more blood tests, MRIs, PET scans, port put in, buying wigs, trying to prepare my children.
2ND step-Get Set
I met with three of my Dr's on Friday and after reviewing my tests, giving me my prescriptions to get filled(nine of them) and answering my last minute questions I AM SET!
3rd-GO
I will run to start my chemo treatment Tuesday. OK so I won't run maybe a jog ok a walk, but I am so ready. I would be lying if I said I wasn't nervous, oh now I am just flat out lying. I hate to say this, but I am scared for the unknown. After Tuesday pain or not I will be fine. My plan is NOT to be sick or tired or all the many things I have heard may happen. I call it being positive, some say its denial, but whatever it works for me. HA HA
As far as the race I will complete it in 6 months and I will win!
I just wanted to add a few quotes that I read to day-
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle."Albert Einstein
"How wonderful it is that nobody need wait a single moment before starting to improve the world." Anne Frank
"Feed your faith and your fears will starve to death" Author Unknown
Everyone have a wonderful week!
Saturday, November 28, 2009
Quick update
The next day the 24Th I went back in the hospital for a same day surgery to put a port in. A port is a device that they put under your skin. It is a cylinder with a soft spot on the top for a special needle to be inserted. Then it has a small tube that is connected to one of my large veins that delivers blood to my heart. This basically means now that this device has saved my veins in my arm. Through this device they will insert my IV in every time I have chemo or they can take blood samples from it also.The Dr's put mine under my clavicle bone on my right side. On Tuesday I went back in to the hospital they gave me one more IV in my hand after attempting 5 times(hopefully that is last time for awhile). They put me out and walla two hours later I had to wake up. It was not to bad just alittle pain for about two days.
This week I go back up for a couple more Dr appointments and then next week I start chemo!
I hope you all have had a wonderful Thanksgiving and have been able to enjoy the holiday weekend. I have to say I have, it is only 6:20 in the morning and I having a pie in the fridge screaming my name!
Wednesday, November 18, 2009
What a Day!
I spent 2 hours with my chemotherapy oncologist. He is really nice and explained what chemo I will be taking, apparently there are several different kinds even for people with the same type of cancer. I will start out for 4 months and go every 2 weeks. Next Thursday I go into the hospital and they will put a port in my chest. This a a device that will hook up to my IV to run the medicine in my body which is basically poison. It is better then going every two weeks and trying to find a vein to put the IV in.
This Friday I go back up to do more testing. I cant remember what the test is called I just know it is going to tell the Dr's how or if I can handle the chemo. I will start my chemo treatments Dec 8th and due to the type of medicine and it being my first time I will be pretty sick. Apparently it will take 5-7 hours the first time . The medicine is administered slowly through the IV and then the Dr's are able to monitor me to make sure I don't have some bad reaction to it.
I am nervous but so ready to get started. I hate the wait!!!!!!!
By the way yesterday you may have heard how the guidelines are changing to change the age of when you should get a mammogram. DON'T LISTEN start going when you are 40. In the waiting rooms today and all the medical personnel were talking about how foolish it is. Many of the patients think that it is a strategy from Obama to cut health care reform?But for whatever reason please don't listen and get checked. This has been a very emotional roller coaster and if I hadn't gotten checked I would not have felt the lump for probably another year and it would have been to late. I can't even imagine.
Friday, November 13, 2009
Home Again !
My surgery went well, more painful then I wanted but I am recooperating just fine. Next week I go back for several Dr's appointments and then will hopefully get the date of my chemo. I just checked this surgery off so on to the next thing. Maybe I won't have to do chemo(positive thinking).
I can never say Thank You enough to so many of you for the burdens you lifted from me and my family. Thank You!
Monday, November 9, 2009
I love my Dr's
A woman with terminal cancer returns to religion with fervor. She knows that God will help her get better.
Early in her sickness, a surgeon proposes radical surgery.
"No", she says, "I don't want to get mutilated and suffer pain. It's not necessary, God will help me".
A while later, she sees a radiologist and he proposes radiation to treat the tumor, which by now is uncomfortably large. "No", she says, "I don't want radiation burns inside and out. It's not necessary. God will help me."
A year later, the cancer has metastasized. It's painful and she is referred to an oncologist. Chemotherapy is advised. "No", she says, "I don't want to be sick all the time and lose my hair as well. It's not necessary. God will help me".
Soon after, she dies. She goes to Heaven and demands an audience with God. "Why didn't you help me?," she whines.
"What do you mean? I sent you help three times: a surgeon, a radiologist and an oncologist. What more did you want?"
Shaquel wanted to add this because she has loved her Drs. She did say that she needs to find a joke or story that adds a plastic surgeon and family physician. She is so grateful to her family physician who started her on this path of great Doctors.
Monday, November 2, 2009
Time for Surgery
Kristen will try to update on any info. for the next few weeks.
I cant't even think what to write because I keep thinking of what I still need to do before I go to bed. So i guess thats it.
You all have a great day!!!!!!!!!!!!!
Tuesday, October 27, 2009
Dr's Dr's Dr's and more Dr's
Today I had physical therapy and then I went to a group that was called "Look good and feel better". It is for women with cancer that will be going through chemo and losing their hair and have other side effects. They have make-up artists come in and you get a free bag of make-up from different companies. There make-up is the good stuff that won't irritate your skin and actually help it. They teach you how to put make-up on your eyebrows and eyelashes to look like you have some. When I first walked in and saw all the ladies in the class it was another reality check for me, to see some of the ladies with no hair and others with scarfs or hats and then watching them take them off. To be honest I was saying to myself I can't believe I am going through this and this is my life for the next year. As the evening wore on, visiting with this ladies and getting to know them and just basically talking about what they are going through, or how they deal with things. I was humbled and felt very blessed to be associated with them. I have met so many wonderful people that otherwise I would have never known. I feel very grateful.
Yesterday I told my doctors that since we have been spending so much time together and knowing that I will be seeing them for the next 2 years ALOT they have become friends and I expect a good Christmas present from them. You should have seen their faces, I just gave them the look like I wasn't kidding . They probably think I am nuts. As I am writing this it still brings a smile to my face, I can still picture the look on their faces. You know your spending alot of time in the hospital when you recognize the cleaning people and they know you. I said to one of the men today while he was cleaning the windows I might as well get your name and introduce myself since I will probably see you again. He was cool with it and we both laughed. But I have to admit I hate running into the same people and you don't know their names. I actually want to know more like so how long have been at this job? Do you like it?How long have you lived here etc. etc.
Enough babbling, have a great day!
No Regrets,
Thursday, October 22, 2009
I Got A Wig!
I then went to meet with the plastic surgeon. It was a very surreal experience looking at real pictures of people after surgery knowing that will be me too. The more I think about it the more I realize I will be just fine and dandy!
Monday, October 19, 2009
Life just keeps getting better!
I decided since I wasn't alone I would go look for a wig. The professionals say you should do this while you have hair. I haven't looked forward to it, but didn't think it would be that difficult. Well, let's just say it was harder then I thought. I ended up looking around, but the lady working was so pushy. She kept saying to me, "Just try a few on," while following me around.
So, I walked out. Yep, I just walked out holding back the tears. I thought to myself: it's amazing how me, along with everyone else, is always wanting to look different. We want to change our shape, be taller or shorter, take away our wrinkles, have thicker or thinner, longer or shorter hair. OK, I have to admit I have always wanted to have dark olive skin and long dark hair with long legs.
But now my hair that I have always had will be gone and not by my choice. Yes, I know you are all saying it will grow back, and you are right, but the doctors say it could be a different COLOR, texture, curly or straight. And now all of a sudden I like how I look! (I guess its about time). So I guess what I am saying to all of you out there is to just love who you are and what you look like now.
After I got home I was mad at myself for not just dealing with it while I was there. So, I am going back up on Wednesday to get one. I WILL NOT leave the store without buying one or ordering one along with a few scarfs and hats. This weekend was just a small dose of reality that I think I needed and obviously will be living real soon.
Today I recieved really good news. My BRCA test came back. The results say that my cancer is not passed down genetically so I can't pass this to my girls. Yahoooooo!
I hope this post doesn't sound depressing. I didn't want it to. I just want to be honest with everyone on how I feel with what's going on. I am good and I do love my hair and will love whatever I get when it grows back. I hate to sound dramatic because there is always the chance that it will grow back just the way it is now, but if not, I will still love life!
I have a doctor's appointment on Wednesday and will try to update!
No Regrets, Shaquel
Tuesday, October 13, 2009
Good News!!!!!!!!
I recieved good news today. The cancer has not spread past my lymph nodes or my left breast.
I had a PET scan done yesterday to see if there was any cancer anywhere else in my body. I was relieved to have my Dr. call and give me the news. I am still waiting for one more test the BRCA.
I also have my surgery date it will be Nov. 3rd. I do not like the wait ,but I have to agree with my Dr. on this one.
I still can't lift my arm , but I am feeling so much better!!!!!!!!!!!
It was so nice to see family at Shaes wedding. Shae you looked beautiful!
Thank you all for the words of encouragement and the hugs.
I definitely have enjoyed all the visits from family and friends. Thank you! Keep them coming!
Monday, October 12, 2009
Tuesday, October 6, 2009
Plans Change!
I decided I would write and let you all know I am alive and doing well ! My Surgery date has changed and as of yet I don't have the exact date. It should be the end of this month but I feel bad that it will be close to halloween and I may be in the hospital so I am going to ask the surgeons if I can have it the first of Nov. What kind of mother would I be if i didn't watch my kids at the pumpkin run or take my usual burnt cookies to their class party, and then take them to the halloween carnival and trick or treating? don't say a smart one HA HA ,But who knows? There are a few reasons for the change of date for surgery, the 1st- My Dr. wants me to have healed and be alittle stronger . When they took my lymph nodes out it raised the risk for lymphedema which would be a permanent change (This is where my arm swells , the skin hardens, it loses it elasticity and can be vary painful,and I would not be able to raise my arm past my shoulder.) So to help that not happen I need to do certain exercises to get it strong ,if I had surgery this week that would make it so I can't use that arm for another couple of weeks. 2ND reason- I have to have a plastic surgeon in with the other surgeon so when the one surgeon does the mastectomy the other can start reconstruction so they have to work their schedules out 3rd- and I think biggest reason is we are waiting for a test result called the BRACA (genetic test) . If it comes back positive it raises the percentage that I will likely have cancer in the other breast sometime in the future so then I will do a bi-lateral mastectomy rather then just having one removed. After I heal from that surgery around thanksgiving then I will start chemo and my Dr. keeps trying to prepare me that my chemo will be very strong which means I will have severe side effects. So when I lose my hair everyone just be prepared it won't be pretty. I was hoping all this wouldn't happen so close to the holidays but I guess I can't control everything .Maybe I will get my Christmas shopping done before the week of Christmas this year!Oh I almost forgot I did get my drain (grenade) out yesterday I thought I would get it out last week but the nurse said it was not ready so it feels so much better not having that on me or carrying it around.
I just want to thank everyone for their prayers, phone calls, cards, flowers, gifts , meals, daycare and just being genuinely concerned for me and my family. We really do feel the love!
And I really am doing good Psychologically, emotionally,SPIRITUALLY and even alittle physically
Wednesday, September 30, 2009
Test results
Tuesday, September 29, 2009
Honesty
- recover from surgery
- have energy
- get off all pain killers :}
- get the "grenade" out ( a term used for this plastic container that has fluids draining into it from the surgery)
- get as strong and healthy as I can before I start Chemo
- stay and be positive
- get some sleep
- take a shower!
- be able to wash my own hair